Cameron was randomly throwing up for months and we didn’t know why. Finally, a CT scan was preformed when we took him to the ER for dehydration. They found a mass in his brain. He was immediately admitted to PICU and an external shunt placed to drain the fluid in his brain in order to safely perform an MRI. He had total resection surgery the next day. Pathology came back as Group 3/4 Classic Medulloblastoma, High Risk. He did not have any metastasis in his spine and his CSF was negative. He began the Head Start IV protocol at the beginning of August, which is also when he stopped eating. His induction rounds of chemo were supposed to be inpatient for about a week, but due to complications, each induction round lasted 3 to 5 weeks.

Every round we experienced fevers due to neutropenia and since we lived far, they kept him inpatient until his counts recovered. We would get about 2-5 days break between chemo rounds, then head back to get admitted again. One of the chemo meds, Vincristine, caused an ileus (intestinal blockage) in his tummy that was extremely painful during his second round. During his third, he had an allergic reaction to one of his platelet infusions. After completing three rounds, his scans were clear and he was ready for Bone Marrow Transplant. According to his protocol, he was randomized for a single transplant that took place in November.

Cameron did very well throughout transplant, but began experiencing phimosis (sealing/tightening of the foreskin) and is now under the care of an Urologist for possible circumcision. His end of treatment scans in December were clear and he had No Evidence of Disease. By mid-January, he was allowed to return to his home which was 75 miles from the hospital. While driving back and forth for follow up appointments during the next few months, he began eating again and said goodbye to his NG tube and the IV pole that had followed him around for months. About two months post-treatment, we discovered a hole in his central line. He was admitted and his central line was removed without any complications.

He hit his 100 day post transplant mark and had clear scans for his 3 month post treatment scans. We are heading towards his six month scans in a couple weeks…praying for NED. Throughout Cameron’s entire journey, the Lord was with us the entire time. HE comforted us when the anxiety and fear were overwhelming and guided the doctors hands through surgeries and every treatment. We are very blessed to say Cameron is Medulloblastoma Cancer Survivor.

– Alyssia Parks-Bryant, Mother